TRiNDS is a specialized contract research organization (CRO) for neuromuscular diseases. It is a full-service CRO with five main pillars of solutions in clinical operations, data management, biostatistics, and study measurements. It is unique with its focus on muscular dystrophies and study outcome developments. It is built on the expertise established with the academic clinical trial network: CINRG.TRiNDS bridges gaps for neuromuscular research by drawing in the key leaders in the field.
CINRG is a consortium of medical and scientific investigators from academic and research centers who share the common goal of wanting to positively impact the lives of neuromuscular disease patients and their families. As an academic clinical trial network, CINRG has been a leader in investigator-initiated studies in neuromuscular disease and especially in Duchenne and Becker muscular dystrophies. CINRG brings together more than 20 clinical and research sites from around the world. Since 2000, CINRG has successfully enrolled over 1,200 patients into over 20 studies. The coordinating center is run by TRiNDS.
CINRG has established the largest and longest Duchenne natural history study to date. It has become an invaluable resource to the Duchenne and rare disease community at large. It has helped identify improvements in standards of care as well as possible gaps, development of clinical trial endpoints and composite measures, as well as sources of variation in disease progression.