TRiNDS Community Engagement

TRiNDS is a specialized contract research organization (CRO) leveraging experience in Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), Myotonic Dystrophy (DM1), Pompe Disease, and other neuromuscular disorders. Under the direction of TRiNDS Strategic Solutions, Community Engagement services offer advocacy and engagement solutions to support successful trials by engaging communities. Our patient science liaison team has deep experience with neuromuscular disorders and other rare diseases in clinical trial settings. We offer centralized support to emerging and established clients who want to engage with the communities they serve.

We offer support for:

Creating engagement strategy to support rapid trial enrollment and high participant retention.
Communicating with patients and caregivers during study startup and beyond.
Creating educational materials for your trial sites.
Training study sites, vendors, and staff about working with DMD, neuromuscular disorders, and other rare disease populations.

If you have an active patient advocacy program, we can:

Expand your reach by conducting outreach and education in new geographical areas.
Grow your clinical trial network by providing extra support and education to your newer sites.
Extend your advocacy team by fielding family communications during study startup and enrollment.
Provide consulting services to help your team learn about a new indication, connect with community organizations, and plan for successful trials.